Health - Newborn Screening Program - Gaucher Disease
Sponsor: Shelly Hettleman (District 11)Committee: FinanceSubject: Public HealthStatus: Hearing 2/18 at 1:00 p.m. (as of Sep 4, 2026)
What this bill does
Official synopsis
Requiring the Maryland Department of Health, as part of the newborn screening system, to screen for Gaucher disease.
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Testimony (16)
MGA witness listFAV 13FavorableUNF 2UnfavorableINFO 1Information only
| Position | Witness | Organization | Testimony |
|---|---|---|---|
| FAV | DeMinco, Lynne | BCRW | Position only |
| FAV | Snyder, Abigaillobbyist | Baltimore Jewish Council | Oral + Written (PDF) |
| FAV | Solomon, Jared | Delegate Solomon | Written (PDF) |
| FAV | Romano, Jameslobbyist | Gaucher Community Alliance | Oral |
| FAV | Rosenberg, Aviva | Gaucher Community Alliance | Oral |
| FAV | Schloss, Madelyn | Gaucher Community Alliance | Oral |
| FAV | Murphy, JD | MD Chesapeake Chapter of the National Association of Pediatric Nurse Practitioners (NAPNAP) | Position only |
| FAV | Hettleman, Shelly | MGA- Senator Hettleman | Written (PDF) |
| FAV | Moshinsky, Caryn and Danie | National Gaucher Alliance | Oral |
| FAV | Edwards, Laurenlobbyist | Individual | Oral |
| FAV | Elliott, Robynlobbyist | Individual | Written (PDF) |
| FAV | Mauer, William | Individual | Position only |
| FAV | Senator Hettleman, Senator Hettlemanlegislator | Individual | Oral |
| UNF | Hamosh, Ada | Johns Hopkins University | Oral + Written (PDF) |
| UNF | Brosius, Robert | The Maryland Advisory Council on Hereditary and Congenital Disorders (MACHCD) | Written (PDF) |
| INFO | Krone, Christinelobbyist | Individual | Written (PDF) |
Organizations on record
BCRWFAV 1
Delegate SolomonFAV 1
Registered lobbyists who testified
FAVElliott, RobynRegistered for: American Association for Marriage and Family Therapists; Amica Center for Immigrant Rights; CareForth; Chase Brexton Health System; Coordinating Center, The; Diabetes Patient Advocacy Coalition…
INFOKrone, ChristineRegistered for: American Coatings Association; Baltimore Gas and Electric Company; City of Rockville; Coordinating Center for Home and Community Care, The, LLC (dba The Coordinating Center); Greater Washington Society for Clinical Social Work, Inc.; LifeSpan Network…